Electronic Library for Guideline Developers

[Electronic Library for Guideline Developers]

5. The patients’ views and preferences should be sought

FNCLCC
Les opinions et les préférences des patients ne sont pas actuellement intégrées. Une méthode pour assurer la prise en compte de l’avis des patients est en cours de développement.
AZQ
Individuals or parties potentially affected by the guideline (e. g. patients, purchasers of health care services, non-medical professional groups or other medical specialists may not have been involved in the development of this guideline. The individuals concerned may have been questioned in a different way (e. g. in writing - by means of circulars to the respective individuals). The answer YES presupposes that the methods of considering such non-involved interested parties have been described.	Personen oder Gruppen, die von der Leitlinie betroffen sein könnten (z.B. Patienten, Kostenträger, nichtärztliche Berufsgruppen oder andere ärztliche Spezialisten), waren möglicherweise nicht an der Erstellung der Leitlinie beteiligt. Die Betroffenen wurden eventuell auf andere Weise nach ihrer Meinung befragt (z.B. schriftlich - über einen Umlauf an die entsprechenden Personen). Ein JA setzt voraus, dass das Verfahren zur Berücksichtigung nicht beteiligter Betroffener beschrieben wurde.

Current Care
… mukaan kutsutaan muiden tarpeellisten erikoisalojen, ammattiryhmien sekä mahdollisesti potilaiden edustajia. Kaikista suosituksista lähetetään lausuntopyyntö ainakin seuraaville tahoille: ….. f) potilasjärjestö(t), jo(t)ka toimivat suosituksen käsittelemän terveysongelman alueella;
NICE
There should be at least two lay members with experience and/or knowledge of patient/carer issues on each GDG (the ‘patient/carer members’). This is to ensure that patient and carer issues, as well as healthcare professionals’ views, inform the guideline development process. In general, the patient/carer members will have direct experience of the condition, as a patient or a carer/family member, and/or will be officers of a patient or carer organisation or support group. The patient/carer members have equal status on the GDG. Example
SIGN
The driving force behind the development of clinical guidelines is the desire to improve standards of patient care. Information about patients' experiences and expectations of health care should inform the development of clinical guidelines, and patients should be fully involved in the process. For example, the development group could involve patients' representatives, or information obtained from patient interviews or literature reviews of patient's experiences could be considered by the group. Wherever possible, patients or their representatives are included as full members of SIGN guideline development groups. Development annex (group composition, patient involvement) GDG page from example guideline

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For further information about the AGREE Collaboration contact f.cluzeau@sghms.ac.uk

Last modified 28/4/04