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Comparison of guideline development programmes

QUESTIONNAIRE FOR DESCRIPTION OF CLINICAL GUIDELINE PROGRAMMES

AGENCY RESPONSIBLE
1. Name______________________________________________________
2. Country______________________________________________________
3. Website ______________________________________________________
4. Type of Organisation p Academic Institution
p Medical Speciality Society
p Disease Specific Society
p Internationa Agency
p Managed Care Organization
p Manufacturer
p National Government Agency
p Private Organization
p Professional Association
p Regional/Local Government Agency
p Other, please specify........................................
5. Funding

a. Year of first guideline
...................................................................

b. Reason for guideline development
...................................................................
...................................................................

6. Funding
(More than one answer possible)
p Own budget
p Governmental support
p Pharmaceutical support
p Other, please specify...............................................
7. Estimated budget for guideline development
(Average budget in US dollars per guideline)

p 0 - 5000
p 5000 - 10000
p 10000 - 25000
p 25000 - 50000
p 50000 - 100000
p 100000 - 200000
p > 200000

8 Estimated budget for dissemination
(average budget in US dollars per guideline)

p 0 - 5000
p 5000 - 10000
p 10000 - 25000
p 25000 - 50000
p 50000 - 100000
p 100000 - 200000
p > 200000

SCOPE AND PURPOSE
9 Objectives
(more than one answer possible)
p Appropiate clinical care
p Cost containment
p Both
p Other, please specify ............................................................................
10. Level of care
(more than one answer possible)
p Public Health
p Primary Care
p Secondary Care
p Tertiary Care
11. Target users
(more than one answer possible)
p Physicians
p Paramedical professions
p Nurses
p Patients
p Health Care Organisations / Hospitals
p Policymakers
12. Scope of guidelines
(more than one answer possible)
p Screening
p Prevention
p Diagnosis
p Treatment / management
13. Who selects topics?...........................................................................................
...........................................................................................
GUIDELINE DEVELOPMENT GROUP
14. Average number of members in a guideline development groupp 0 - 5
p 5 - 10
p 10 - 15
p 15 - 20
p >20
15. Average number of disciplines in a guideline development groupp 0 - 3 disciplines
p 3 - 5 disciplines
p 5 disciplines
16. Experts involved in guideline development
(more then one answer possible)
Always involvedOnly if necessary
Informatics, library sciences
p
p
Clinical epidemiology
p
p
Statistics
p
p
Communication
p
p
Health economics
p
p
Social sciences
p
p
Other, please specify
............................................
p
p
17. Involvement of patients
(more than one answer possible)
p Yes, by participation in development group
p Yes, by surveys of patients views / preferences
p Yes, by review by representatives of patients organizations
p No
18. Who is responsible for editing the guideline?
(more than one answer possible)
p All members of guideline devlopment group
p Chairman and / or secretary of the guideline development group
p Standing editorial staff
p Editorial commitee that varies for different guidelines
p Other, please specify
.......................................................................................
METHODOLOGY OF GUIDELINE DEVELOPMENT
19. Is there methodological training for members of the guideline development group before starting with the guideline development? p Yes, obligatory
p Yes, optional
p No
20. Method used to colect evidence
(more than one answer possible)
p Hand searches of published literature (primary and/or secondary sources)
p Searches of electronic databases
p Searches of patient registry data
p Searches on unpublished data
21. Methods used to analyse evidence
(more than one answer possible)
p Decision analysis
p Meta-analysis
p Systematic review
p Non-systematic review
p Experience based
22. Methods used to formulate recommendations
(more than one answer possible)
p Subjective review
p Informal expert consensus
p Formal expert consensus (consensus conferences, nominal group technique or Delphi technique)
p Evidence-linked (weighting according to a rating scheme)
23. Method of review
(more than one answer possible)
p Clinical validation - pilot testing
p Clinical validation - trial implementation period
p Comparison with guidelines from other groups
p External peer review
p Internal peer review
24. Is there a process of guideline authorization? p Yes, formal authorization by endorsement by professional organization of the target users
p Yes, authorization otherwise, please specify
.......................................................................................
p No
PRODUCT AND DELIVERIES
25. Total number of guidelines producedp 0 - 10
p 10 - 20
p 20 - 30
p 30 - 50
p > 50
26. Average size of guidelinep 0 - 2 pages
p 2 - 5 pages
p 5 - 10 pages
p 10 - 15 pages
p 15 - 25 pages
p 25 - 50 pages
p > 50 pages
27. Different versions
(more than one answer possible)
p Extensive version with notes / references
p Short version
p One or two page summary
p Patient version
28. Tool for application
(more than one answer possible)
p No tools
p Algorithms / flow charts
p Balance sheets
p Risk tables
p Patient leaflets
29. Media used
(more than one answer possible)
p Paper
p CD-ROM
p Internet
IMPLEMENTATION STRATEGIES
30. Health professional orientated interventions
(more than one answer possible)
p Educational materials
p Conferences
p Local opinion leaders
p Outreach visits
p Patient mediated interventions
p Audit and feedback
p (computer) reminders
31. Use of financial incentivesp Yes, specify ................................................................
p No
32 Organisational interventions
(more than one answer is possible)
p Changes in settings / site of service delivery
p Changes in physical structure, facilities and equipment
p Changes in medical records systems
p Changes in scope and nature of benefits and services
p Presence and organisation od quality monitoring mechanisms
p Ownership, accreditation and affiliation status
p Staff organization
p Other, specify ...............................................................
.........................................................................................
EVALUATION AND UPDATE PROCEDURE
33. Use of monitoring and documentation (systematic data collection)p Yes
p No
34. Is there any regular quality system for your guideline program?
(more than one answer possible)
p Yes, by developing and publishing criteria for good guideline development ('guidelines for guidelines')
p Yes, by revising guidelines based on comments from the professional community
p Yes, by appraising existing guidelines
p Yes, we submit the guidelines to a guideline clearinghouse
p Yes, otherwise please specify
............................................................................................
p No
35. Procedure for updating guidelines
(more than one answer is possible)
p Updated on regular basis
p Updated irregularly
p Formal method, please specify
...........................................................................................
p No formal method
p Not updated
36. What are the plans for further development of your guideline program for the near future ...........................................................................................
...........................................................................................
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Additional remarks:

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